Tuesday, June 29, 2010

Fun, fun week-end

Four other couples and Bill and I went to Richland, WA (eastern side of the state) for a car show over the week-end. I was a little concerned about my own stamina in the heat. I was careful to stay in the shade, took naps when I needed and even went to bed early, and did not play board games! Shocking! We had a great time of fellowship, stayed in a nice motel by the Columbia and just plain relaxed! It was a much needed get away! We do this annually and will hit Wenatchee next year!

Still no real changes in my health. Some days are better than others. My right eye is still a little twitchy - moves left better than right. I am still a little wobbly and use my cane when out and about just in case. I have a disabled placard now and that really helps as I have started to drive a short ways. That has done wonders psychologically! Fatigue is still a bug a boo, and my short term memory and the ability to multi-task are directly affected by the fatigue. So, that's the update as we come up on the third month on July 1. I never would have guessed it would take this long. I don't see the neurologist until August 2 so we will see what happens next. It is certainly not in my hands!

Random Pictures

Ferrelli's Pizza Discussion
Princess Hannah with Dough Tiera
Silly Johnny
Do you like your new flip flops?

Happy Grandpa!
King of the Caterpillar!                                                                                                  Build a Bear

Happy 5th Birthday, Hannah!

Monday, June 21, 2010

Time for Another Update!

All of a sudden it is past Father's Day, almost the end of June. We have had a miserable June so far. Mostly rain with a few nice days "sprinkled" in here and there! When I get pictures from yesterday I will try to remember to post.

Health Update: I am not getting worse, but have sort of hit a plateau. My right eye is almost normal and I am driving some. Just around the neighborhood so to speak. I still need the cane when out and about. Most days are pretty good as far as gait goes, and others not so much!

Fatigue is my biggest enemy. I still need a nap every day. If I do a lot in one day, or do something a few days in a row, I pay for it with worse fatigue. I hit the wall around 2 or 3:00 p.m. and have to sit down and rest. Sometimes  I
wake up 2 hours later! (OK - most days I wake up 2 hours later. I think the longest nap was 4 hours in the very beginning.)

I think I am doing better cognitively as well. I had a really hard time multi-tasking at first and I still have problems if I get really tired. Short term memory is still an issue at times.

I know it sounds awful, but I really am doing pretty well. I got a disabled placard good for six months and that has really been a help. I will be re-evaluated on August 2 and we will go from there. I am still off work. I drop in for staff meetings once in awhile just to stay updated, but I know I can't handle a full (five hours!) day yet. I can get short term disability for 6 or 8 months I think.

Bill has surgery on his right foot on July 2 to remove bone spurs from the ankle joint. He is really looking forward to it! He has limped around for far too long!

We have a couple trips planned this summer. We leave for the tri-cities this week-end for a car show and in August we will go for a few days to Hot August Nights. It is really weird to think that I can actually have most of the summer off with Bill. Very nice that we get some together time. Check back with me the end of August and we shall see how it went!

I'll try to be more diligent about keeping updated! Try being the key word!